Friday/Saturday, November 16/17

Sorry I missed yesterday, and I am having to cover two days in one blog post.  Yesterday David had Physical Therapy early with Rose.  She told us that David should get up and walk every thirty minutes, which we have been trying to do.  The hemi walker makes it possible for David to get around pretty well, and each day he gets better at maneuvering through the doors in the apartment.  In the afternoon, Gail Johnson stopped by to do the Neuro Therapy with David, but had some problems with the program and will be coming back on Monday.  We had a visit from Lynda in the afternoon, and then Speech Therapy with Maria.  She was the new therapist, and was sure that David’s problem is from Apraxia more than Aphasia.  I could have told her that. I am getting tired of having to explain all the details to every new therapist.

In the evening, David told me that he thought I was lazy.  He believes that because I am not able to get everything that I need to get done, for myself, that I am not working hard enough.  Needless to say, it took quite a while to get that across to me, and I have to say, it was worth the effort!    Today, we had a visit from Steve and Judy O’Keefe, and Judy agreed with David, in that, she thinks that I need to figure out a way to compartmentalize my time, and really steal time to just take care of things for myself.  This all came from trying to find a primary care Doctor, and make an appointment.    I also need to find a support group, and haven’t made that connection yet either, so Monday morning, I will send the aide off with David to get his blood drawn, and I will stay at home and make a Doctor’s appointment and try to connect with the support groups at Beth Israel.  Will let you know how that turns out.

So, today we had an aide this morning, which I was surprised by.  It was because there was one morning this week that was missed, and today was in place of that missed day.  We also had FaceTime calls with Lois, followed by the visit and lunch with Steve and Judy, and then the weekly Alex and Claire call.  I cancelled the afternoon aides for today and for tomorrow, and we went to the movies instead this afternoon.  We went to see “Flight” which I liked better than David did.  I thought it was a very interesting and honest portrayal of addiction and denial.

I think that one of the reasons that I missed yesterday, is that the days are now beginning to settle into a rhythm.  We get up at about the same time each day, and David generally goes to sleep early – tonight he was out by 9PM.