Wednesday, December 12

12/12/12 and only 9 days until the end of the world!  Does that mean that we won’t get to see Liza Minnelli and Alan Cumming at Town Hall in March?  The days are winding down until we leave on Monday.  We worked on walking some steps with Rose the PT in preparation for San Francisco.  There are steps up to Alex and Claires, so I wanted to be prepared.  It went pretty smoothly in the stairwell here.

Went out and got stamps, and David stamped away and sealed the envelopes, so we are almost done.  Tomorrow Lynne is coming by for a visit, and will take advantage and run some errands.  We also have an appointment with the Physiatrist which will be good too.
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Hopefully more exciting update tomorrow!

Tuesday, December 11

First, David wanted me to let everyone know that he was helping with the Holiday cards yesterday.  He was putting the return address labels on, which was very helpful.  He will also put stamps on as soon as I get them tomorrow.

Today we went and got blood drawn, stopped by the eyeglass store to have them adjust David’s new glasses and then went to the barber.  David had a haircut and shave, and I just got the haircut.  Then, home and went to lunch with Anthony at the Korean food court on 32nd Street.  It was nice to get out and great to spend time with Anthony.  When I got home, it was almost time for Diane the Occupational Therapist to arrive.  She came and did some work with David, and at the end, the tray that she ordered for his wheelchair arrived, but I had them take it back because it didn’t really work.  I think because the one chair has shorter arm rests and the transfer chair has arm rests that are higher, it doesn’t work on either.  Also, David is spending less time in the wheelchair, so it just doesn’t make sense anymore.

As Diane was leaving, Siobhan arrived, and had a great hour of speech therapy.  Also did some exercises throughout the day.  All in all a good day, and we ended it by watching The Bourne Legacy which David really liked, I thought the chase at the end was about a mile too long.

 

Monday, December 10

We had a visit by the Speech Therapist – a different one – who seemed to get words out of David.  She worked very quickly and only stayed for half an hour, but he seemed to be getting things out.  It may have something to do with how early it was.  Gail Johnson then came by and did some Neuro Therapy, and she said she thought that he was being more verbal as well.  Good signs.

then Jennifer arrived, and David shaved or I should say, I shaved David, and then while Jennifer gave him a shower, I ran to Staples to get pens for writing Christmas cards.  The 17th is going to sneak up on my quickly and I have got to get these cards in the mail by the end of the week.  Rose came by for PT in the afternoon, and David did really well walking.  She said that even since last Thursday, she sees a great improvement, and there was another small miracle – he shrugged his right shoulder!  That was something that he started to do a while ago, but then stopped and I am glad that it is back.  Another great sign.

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Tomorrow we go for blood work and a haircut in the morning, then Occupational Therapy in the afternoon, and lunch with Anthony.  A light day.

Sunday, December 9

Well, today we had a great food day.  First lunch of turkey soup and samosas that Pat and Geoff brought yesterday – very yummy, and then a visit from the Liz, Gene, Electa and Quinn bearing gifts from Eataly.  For dinner we had the truffle agnolotti with a light vodka sauce that I improvised.  They were delicious!!  So rich and both David and I ate every bit.

Before dinner, we had a visit from Sheila and had a great conversation about lots of stuff, and about the History of the World in 100 Objects.  Tonight’s installment was a tag from King Den’s sandal.  King Den was an early Pharaoh in Egypt.  David was confuse as to why that was so important, but sometimes the author is including things that seem very pedestrian, but say something about politics and power.  In this case, there was an image of the King smiting an enemy.  A warning of sorts.  Anyway, it seemed like a stretch.  When Sheila left, she suggested that we walk her downstairs to the lobby.  It was a great bit of exercise for David, and even with all the folks coming and going, David held his own.

After dinner we watched a movie with Elizabeth McGovern which was a bit reminiscent of Downton Abbey called Cheerful Weather for the Wedding.  I thought it was quirky and funny, but David, not so much.  Then Dexter and Homeland.  Now, bed is calling.  We have a busy week with Doctors and therapists and getting ready for the trip – one week from tomorrow we will be in San Francisco!

Saturday, December 8

This morning we had a visit from Pat and Geoff and had a nice time chatting about UNIS, looking at pictures from the latest theatrical production at the school, “Much Ado About Nothing” and some wedding photos.  We then had our weekly call with Alex, Claire and Theo, and it was, as always, great to see them.  Can’t wait to see them in the flesh in a little over a week!!  Very exciting!!

We went to the afternoon showing of “Lincoln” and I liked it much better than David.  He found the beginning too slow and talkie.  I didn’t mind it at all, and just enjoyed the historic spectacle of it.  I was also very moved by it at moments, but then, I am a sucker for that stuff.

Then home, and ordered in some Italian food, which was good.  Now, David is asleep (late to bed for him) and I will be going in in a few.  All in all, a good day.

Friday, December 7

Today we got up at our regular latish hour.  Not terrible, but in time for Baba, the attendant.  I ran out before he arrived to buy milk for cereal.  Then Baba got David in the shower, and I drove the car back to park at UNIS.  Hopped on the bus, and was home almost before David was dry.  Before Gail arrived for Neuro Therapy, I began making a tomato sauce for dinner, and continued cooking through the afternoon. Erectile dysfunction is sexual disarray caused to men that has its main focus on making men free from erectile dysfunction – so much so that it might make a man feel more relaxed. cialis generic 5mg A little bit of vital information can make all the difference. cipla levitra cialis 5mg sale It results in increased frequency of urination, especially during the night. This is possible after the omission of patent check out for source buy generic levitra protection.  Baba left, and we began working on our Christmas/Holiday cards.  Little did I know exactly how frustrating it was going to be for both of us.  He had loads of people to add to the list, but it was excruciating getting names.  I think we are about set.

I have to say, while Vermont was a great diversion, it took a lot out of me.  I am trying not to let David know how taxing some things are on me, but he still gets it and feels bad for me.

Thursday, December 6

We drove back from Vermont this morning.  It was a very uneventful trip, and there was no traffic to speak of, which was delightful!  Even at the Lincoln Tunnel we breezed right through the EZPass lane.

Once we got upstairs, we watched some more TV – “Homeland” and “The Good Wife” and then Rose came for Physical Therapy.  Chrissie came soon after Rose arrived, and we walked down to the gym, a first for David.  He did a lot of walking and was pretty tired at the end.  We had a nice visit with Chrissie after Rose left, and then, ordered Thai food, some more TV, then to bed for David.

I will join him soon.

Wednesday, December 5

Another quiet day in Vermont. Colder today and we had some snow flurries this evening. It must have been because we watched “White Christmas” yesterday. Vera Ellen has a freakishly small waist that always distracts me – there is something just no right there! We went out to dinner with my Dad and Nancy, which was great
We are leaving early tomorrow and have therapy in the afternoon. Also got a call from the doctor yesterday, and he reduced the blood tests to once a week, which made David very happy. Me too!
The fire is blazing, and I am heading to bed.

Tuesday, December 4

Sorry it has been a couple days. We are in Vermont, and it has been quite a trip. Between getting the bathroom set up with gear for bathing and keeping the fire going, I haven’t had much time. David is now snuggled in the bed, and I am heading that way now.
It has been great being back up here, and David is loving it, but there isn’t much for us to do. The weather was great today, but it is raining now. There really can’t be enough said for an elevator and apartment living – pushing the wheelchair through the gravel and grass can be tricky!

Saturday, December 1

Where does the time go?  I suppose for the same reason I can’t find time during the day to write this, time just slips away, and it will feel like tomorrow when we get on the plane for San Francisco on the 17th!  Today we had visits from Susan and after we spent some time chatting, Marjorie stopped by.  Thanks for the bagels from both!

We took a nap in the afternoon.  Another question – why am I still tired when I sleep well at night and take a nap in the afternoon??  the cane arrived and David did some practicing with his new tool.  He seems a little frightened by not having as much support, but I think he will begin to trust it with some practice.
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At 5:45pm Dave and Pamela came by and we headed out for a great dinner at Artisinal.  Great food and company.  Congratulations to both on their recent engagement!!

Friday, November 30

We went to see “Argo” tonight.  It was great.  My audition went well, and it was funny, but it was in a theatre where I worked in the early 80’s doing wardrobe and make-up for a very strange production of “him” by e. e. cummings.  That was when it was called Vineyard Theatre.  One of the few things I remember about the show was a series of lines that went something like this:

Rich person: Are you hungry?
Poor crowd: Yes!
Rich person: Do you have any food?
Poor crowd: No!
Rich person: Well, then it is pretty stupid to be hungry.
 

It was riveting!

I didn’t write in the afternoon, but here is the video of the latest walking in the gym.

Thursday, November 29

You know, I was thinking today that when I write this blog, it is late, I am tired and it must sometimes come off in a weird sort of way.  I know (and sometimes catch) there are spelling and grammatical errors, because I rarely go back an proof them.  All through the day I think of things and say “I should put that in the blog tonight!”  and then just forget about them.  Maybe I will write something tomorrow afternoon for a change of pace!

So, I have another audition tomorrow.  I got an email from some company who saw my resume and headshot on Backstage.  I am not holding my breath, but, will go  I can’t even remember the name of the company, and don’t want to look it up right now.  Will let you know how it went.  We got up early this morning because Rose, the PT had a session at 8am.  David didn’t remember that I told him that this was scheduled, and was very confused.  He wanted immediately to look at the calendar to check to see if it was written down, and I know it wasn’t because she made the appointment late yesterday afternoon, and I thought just telling David would be OK.  I learned my lesson – if it isn’t written down, it isn’t happening.  He had a great session and Rose had David walking with a cane.  She has ordered a cane that will have a wrist strap and will have a wider base – sort of like the “Hurry-Cane” as seen on TV.

Today was one of those days when my multi-tasking came in very handy.  Between PT, OT, Calls from the Outpatient PT and OT and Pharmacy and trying to schedule the ST and a visit from Maria to go over menu options, I sometimes wasn’t sure if I was coming or going.  While I was talking to Maria and David was working with the OT, she asked him if he ever walked around apartment with the walker, to which he said no, and in mid sentence with Maria, I turned and said “yes he does”, and then right on with Maria.  I think she thought I was crazy!  Both Maria and Diane.

Maria brought some delicious sandwiches that we had for dinner and cookies for dessert – thanks Maria and Halcyon Gourmet!  Great, great stuff!  I had scheduled the MJHS Speech Therapist for 7pm tonight, and when she called at 7:10pm to say she was on her way, I told her not to come, it was too late.  David wasn’t happy about it being at 7pm, and at 7:00:01 PM he looked at his watch and then at me, and wanted me to call and cancel.  I was glad she called so I could save her the trouble, but he has no patience for that.  Rose – the PT and Siobhan are the only therapists since the HJD that seem to know how to keep a schedule.

At 8pm David wanted to go to sleep, and then at 9pm he called and said he wanted to get back out of bed and watch Project Runway All-Stars.  He went back to bed right afterwards.  We got the new chair, which is much lighter and easier to maneuver.  I think it is less comfortable, but it is really just for transport, and not sitting for long periods.  It may not be a bad thing if the wheelchair is not David’s favorite place to be.  I have been meaning to post another walking video and will do that tomorrow for my afternoon post!

Wednesday, November 28

We slept very late this morning.  David slept over 12 hours and I was almost at 10 yours when we woke up at 10am.  I guess maybe we needed it.  Jennifer came and got David showered and dressed and I went out to look at wheelchairs at a local store.  We need something more portable, and I bought a transport wheelchair that is light, and folds up more than the chair we have now.  David won’t be able to move himself in the chair, but it really is meant for me to push.  They are delivering it tomorrow.

Soon after I got home, Rose came to work with David, and will be coming early tomorrow morning for the last session.  She is going to put in for two more weeks, and we will see what happens.  It would be great to get the additional time before heading out west.  Then when we get back, I can schedule his outpatient sessions.

We watched “Modern Family” and a little bit of the “Downton Abbey” promo show on PBS, then off to bed for David, and I have been puttering around, and ready to head to bed now.  This is what I get for sleeping so much last night!

Tuesday, November 27

Today we went to the Physiatrist, Brian Im.  There was initially some confusion at the front desk about whether we were supposed to see Dr. Im or Dr. Ahm, but that got straightened out.  I am sure it happens often.  He was terrific, and spent over an hour with us.  He also had taken the time to read David’s file, so we didn’t have to waste time going over the basics.  We talked about his Physical Therapy, Occupational Therapy, Speech Therapy and he suggested with add a Ophthalmology Therapist and a Vocational Therapist.  David was very excited about the additions.  We should be getting calls from the rehab center on E 38th Street, and I have to follow up with an appointment with the Neurologist, Dr. Blum.

Thank God Jennifer arrived before we left for the appointment, because I don’t think I could have made it alone, in the freezing rain/snow.  The wheelchair that David has will not fit in the cars, so I am going to have to order another “Transfer Chair” that will be smaller and lighter.  It will be good to have for the trip to CA and make it easier to get around.
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We came home after the appointment, watched some TV, had dinner (I cooked) and then finished object #2 in our journey through history.  More tomorrow!

Monday, November 26

Another dull day.  Blood test, walking, cleaning, lunch, more walking, speech therapy, calls and the second of 100 objects.  This one was a stone tool from 2,000,000 years ago – the first object in history.

We ordered indian food for delivery and tomorrow we have an appointment with a Physiatrist.  Hopefully the outpatient work will begin next week as the Physical Therapy ends on Thursday.

Good Night.

Sunday, November 25

The Mummy of Hornedjitef
The Mummy of Hornedjitef

Today was also quiet.  Baba arrived in the morning, and David remained in bed for a little while, then got up. I ran out for breakfast for us, made coffee, and then Baba gave David his shower.  Afterwards, I ran out to Home Depot for a better shower head and some other stuff I needed for the house, and went to Trader Joe’s for Davids Ginger Cashew cereal (thanks for turning him on to it Kathleen!)

When I got home, it was almost time for Baba to leave and I paid some bills, and we watched the news then took a nap.  I made a lamb stew for dinner, and David liked it, or that was the impression I got.  We watched some TV – the end of “The Women”, “Antiques Roadshow”, “Dexter” and “The Good Wife”.

Last night, David asked me to begin reading to him from a book he was given at the HJD called “A History of the World through 100 Objects”.  All the objects are from the British Museum, so I thought it would be fun to read it in a British accent – give me a little joy.  David told me tonight that it didn’t give him much joy, and I should read it straight.  As I was finishing the first chapter about the mummy of Hornedjitef, and the author was quoting an Egyptian author, David asked me to go back and read the author’s name again.  He then laughed at me, because he thought my pronunciation was a bit off.  I told him that I would, from now on, be alternating between British, Egyptian and German accents.

Saturday, November 24

Another quiet day.  The aide, Baba, arrived at 9am, and got David showered and dressed.  Then, at 11am, we had a visit from Jane, who read one of her encouraging poems that she wrote for David.  We had a nice visit, and soon after she left, Joy came by.  We had lunch with Joy, and David keeps wanting to show off his walking for folks. The condition refers to the inability to achieve and maintain an this link viagra online erection for a good intimacy. Some of the common symptoms of stuffy nose or blocked nose such as allergies, hay fever, sinus infection, stress, viagra pfizer, cold air, spicy foods, deviated septum, vasomotor rhinitis and many more. When mice were treated with generic cialis viagra after having reversed light and dark cycles, effects of traveling were improved with the medication. This vardenafil cost causes the veins of the penis to absorb a greater amount of blood, upon which the muscles become relaxed and allow the user to obtain a suitable dosage and the guidelines depending on the underlying diseases and the severity of the diseases.The active ingredients of this medication helps ED patients to get back their lost happiness.  Joy, actually insisted that David get up and greet her at the door, and he also walked her out.  Little by little, walking is becoming more of our everyday existence now.

We took a nap in the afternoon, and then watched “Jezebel”.  Then, it was off to bed for David.  Maybe we will go to the movies tomorrow.

Friday, November 23

Today was quiet.  We went to get blood drawn, and there is usually a crowd and wait, but we walked in and were the only folks there, so we were done in about 2 minutes.  On our way back, we stopped at the corner to get two egg, cheese and bacon on a roll – a guilty pleasure.  There was no aide this morning, and when I got home, I gave the agency a call, and they, after some looking around, said that the insurance company ended the aides on Wednesday.  It would have been nice to have gotten a call letting me know that.  She said she called and left a message on David’s phone.  This was probably the fourth time I have told the folks at MJHS that David had a stroke and can’t speak, so they should use my phone number, but I guess none of those folks made a note of that.  Anyway, it looks like our services from this organization will come to an end next week.  I will use SelfHelp for the aides that we hire.  Much better service, MJHS has been a disappointment from the start.  I have never gotten calls returned, and every person they send has no idea what the situation is, so it took valuable therapy time to go over details that should have been relayed prior to the visit.

Jennifer came to help in the afternoon, and we did some walking in the gym and lounge.  After Jennifer’s shift was done, we went out to dinner for sushi around the corner.  I think it is probably the best sushi I have ever had.  Not cheap, but really good.  Then, home, some TV and early to bed for David.

Thanksgiving 2012

I am thankful today for David and his tenacity.  We had been debating whether we would use the wheelchair to go to Thanksgiving dinner or us the hemi walker, and when we woke up this morning, David announced that we would use the walker.  We didn’t have an aide today, so I got him up and showered in time for a visit from Liza and Jon.  It was great to see them both, and we had some nice lively discussion, and I now know that I have to order out more and not cook so much.  Who knew?

We left at about 4:30pm for the ride uptown to Nancy and Peter’s apartment on CPW.  It was a very nice dinner, and great company – Nancy’s Mom Norma, her aide, their daughter Rebecca, Frank, David and Me.  After dinner the dessert guests began arriving, and David started fading.  We made it to the apartment without too much stress, and the same for getting to the car on the way out – even with the steps in the lobby.  I was very impressed, and told David so.  Altogether, it was a great evening – thanks Nancy and Peter!

Wednesday, November 21

Merrick arrived this morning, just as we were getting up.  She got David into the shower and dressed, and finished up in time for Siobhan and Speech Therapy, which went very well.  Afterwards, we got a call that David’s new glasses were ready, so we went up to 36th Street to pick them up.  Fortunately, David wanted to go, because when we got there, they didn’t quite work for him, so they are redoing the lenses.  They will now be ready for pick-up on Friday.

Then, after 1pm, we went down to the gym and did some walking.  After that success, we decided to test the lobby out, and see if David could make it from the elevators to the front door, and he did, and turned around and walked back to the elevators.  I think that tomorrow, we may go to Thanksgiving dinner without the wheelchair and just take the walker.  David will be able to get from a cab to the elevator of the building and get upstairs to sit down.  It could either be a great achievement or a great mistake, but I am leaning towards the former.  We will see how he feels about it tomorrow.

We then had a visit from Michal and she came bearing gifts from the Queen’s campus – Starbucks and Rugelach, who could ask for anything more!! Then Lisa came bearing more stories of UNIS.

After the social hour, it was back to work with Diane the Occupational Therapist who showed me how to massage David’s hand, which he loves. And then Cynthia, the other Speech Therapist came by and worked some more with David.  She also thinks he is making progress, but just needs to keep practicing.  After that, I made dinner, and we watched and episode of “Boardwalk Empire”.  David found it rather confusing, and not sure how much of it he got.  We may have to backtrack a little to get him caught up.

Finally, we finished an episode of “Being Human” a BBC drama along the lines of “True Blood” without all the sex.  It is about a vampire, werewolf and ghost sharing a house in Bristol.  Much better than is sounds!