Today I arrived during David’s Speech Therapy with Siobhan, a substitute for the holidays, which was great.  His regular ST comes back tomorrow, and David asked if he could have Siobhan replace his current ST, but she said that she couldn’t.  Her boss – David’s current ST – wouldn’t like it.  Later, he had Physical Therapy with Minet, and did some walking without the brace on the parallel bars.

We had a visit during lunch from Julie Halston, who brought some black & white cookies and French macaroons.  Later in the afternoon, Lynda Crawford stopped by and read a scene from the play that she is working on.  I stayed through dinner, but hit the road when I saw that there were some severe thunderstorms coming through NY.

David seems to be speaking more, but during the session with Siobhan, she was working with letters of the alphabet, and said that David and I should do this practice whenever we could, so later in the day we did it twice.  Basically, I show him a letter (consonants only) and he is supposed to say what the letter is, and then produce the sound.  She said that this would help with his beginning to initiate sounds and words.  Unfortunately, he didn’t get many of the letters, and most of the sounds were also slow to come and often difficult.  He also would forget the letters and sounds immediately after he had gotten them.  I guess that is why it is important to practice this, and we will continue.

Last night, I didn’t sleep well, and woke up later than usual, so got uptown late, and David was busy with Yvette his OT doing exercises.  He had a much better night, and was in good spirits.  We then worked with Minet, his PT and did some more walking with the brace.  It was great to see, and he gets more comfortable every day.  He also loves the nurses aide who is working with him today, so that was a relief, and the staff supervisors came by and talked to me about the issues over the weekend and assured me that they would identify the person who had made David so upset, and make sure that they were not working with him again.  Of course, the sad thing was that they were still going to be inflicted on another resident who may not be able to speak for themselves.

Yvette told me that there was going to be a meeting scheduled this week to talk about David’s progress and what the plan for brining him home will be.  I will keep you all posted on that.  David also made it clear that while he has made progress, he thinks that he is not quite ready for coming home yet, but we have a clear goal, and I have it in my view on the horizon.

We had a visit from Joy and were joined at the end by Frank Banton.  Both were great visits.  Oh, and by the way, after my lapse in memory last week, it came to me – Jane and Henry Burliss (sp?)

Heres a little video proof of David’s walking.

First, thanks for all the advise.  It was all helpful.  I am not planning on doing anything rash, and today was much better than yesterday.  There were two momentous things that happened today.  The first one was that David walked a bit.  First a short distance with a walker and the Physical Therapist’s help, and then two longer walks with a brace on his knee.  The second was we had a great FaceTime chat with Ales, Claire and Theo.  It was great to see the happy family!

We also had some visits today from Nancy Hoffman and Peter Greenwald, Jackie and Marjorie.

Today was quite a day for events and visitors.  When I arrived, David was quite upset about something.  He finally explained to me that he had rung the bell for assistance earlier in the morning, and one of the nurses aides came in, asked what was the matter, and then left.  Not sure if she understood what he was asking for, or just didn’t care.  He rang again, and the same aide came in, and again, I am not certain what transpired, but he did seem to be upset by whatever did happen.  He simply wanted to be taken to the bathroom.  I asked him if there was someone who was not nice to him, and he said yes, so I asked him to let me know if the person came into the room so I could identify them.  Then I went to the nurse, and told her that David had asked twice to be taken to the bathroom, and still needed to go, but wasn’t sure what had transpired, but that she needed to get someone to help immediately.

A few minutes later, two nursing aides came with a lift to hoist him out of bed and take him to the bathroom.  I told them that this wasn’t necessary and that the aides simply need to help him get to his wheelchair and then to the toilet and I thought this was a step backward and refused to let them use it.  David then pointed at one of the aides, and I asked if this was the one who upset him earlier, and he said yes.  I asked them both to leave immediately, and that another attendant would need to be called.  I then went to the nurses station and asked if there was a nursing supervisor that I could speak to.  I was in luck, because the woman at the desk was the weekend nursing supervisor, and that she would be with us in a few minutes.  She came down and David confirmed the story to her, and she said that she would submit the report and that another attendant would be sent to help.  Needless to say, David needed to go now, so, I took matters into my own hands, got him dressed and transferred him to the wheelchair and then to the toilet.  When he was done, I moved him back to the chair and we sat for a while.  After a few minutes the supervisor came by and saw that he was dressed and in his chair, and she chastised me for moving him, and asked if I had taken him to the toilet as well.  She said that I should not have had to do that, and would make sure that it never happened again.  We then, took a stroll to the garden, and while there, I thought to myself – if I can transfer him to the chair and the toilet, what the hell are we doing in this sub-accute facility?  If I could have some help at home, why not move him there?  At least I would know he was safe, and I think that outpatient therapy would be just as effective, if not more so.  So, on Monday, I am going to talk to the social worked and see if I can spring him from the Jewish Home!  I mean the private room is nicer, but, after today, I think he could get better care at home.  Not to mention, he would be happier.  The big question is the therapy – how much and the quality.  Also, how will the insurance company feel about it?  Please, chime in and tell me this is a good idea or what the hell am I thinking?

The rest of the day was much better with a steady stream of visitors.  Margot Steinberg, an old UNIS staff member, followed by Hilary Ainger and Judith Honor and husband Ron, then Gwen Lipsky and finally we were joined by my brother Chuck and his wife Doreen.  We had an engrossing conversation about Honey Boo Boo, and now I know who that is, because I kept hearing comic references, but had no idea.  I’m so out of it.  We also got a lesson in all the types of reality TV from Gwen, who is something of an expert, and she promises to bring a diagram showing how they all work together.

Heres another picture of the baby!

Today was uneventful.  We got off to a late start because of taking care of some morning business, but then we were off and running. First with Yvette, the Occupational Therapist followed by some standing with the OT and the Physical Therapist, Minet.  Then a break, and I took a walk, but when I got back, he had already had Speech Therapy with Ilana (I think that was her name, will check tomorrow).  Before my break, Mary and Peter brought sandwiches for lunch, which was great.

I was exhausted after the second PT session, and I wasn’t even doing any of the work!  We went outside to sit in the garden again, and at around 4pm, we had a visit from Jane and her husband, and I want to say it was Bob, but that is probably wrong.  I have got to get folks to begin signing the book again, or I will never get names right!  Sorry.  Jane worked with David at UNIS, but is now retired, and we look forward to more visits, as they live nearby.

Then, I headed home, and took a nap, and now remembered that I had to write this, so up for a few minutes, and now, back to bed!  You will forgive any typos or glaring grammatical errors!

OK, so now we have had the first day with his regular therapists at the Jewish Home, and David is feeling much more relaxed. He really was worried about his new “Teachers”, and I think he is pleased with the team. We met with the Speech Therapist this morning, and she did her assessment and it went well. I was glad I was there to explain, from my perspective, what David’s issues were, and David didn’t look at me like I was crazy at any of my comments, so I think they were good. I actually got a thumbs up for a couple of my insights. For some reason, when he was admitted, he was moved back to soft foods, so she had to come back and watch David eat lunch. He thought it was very weird to have us sitting, like an audience, watching him eat the lasagna that Peter and Mary brought for his lunch. He passed again, and can eat anything. She said that she was impressed, because many patients take months to get swallowing down!

Peter and Mary came by earlier, but were left in the hall waiting patiently while David was using the toilet. You may think that this is TMI (Too Much Information) but, he didn’t use the bedpan, he actually, with the help of the nursing aide, moved from the bed to the wheelchair to the toilet in the bathroom, which was momentous for me. This is one of the things that he will need to be able to do to come home, so, one more step! When I arrived, he was very uncomfortable because he was constipated, and after his visit to the toilet, he was in a much better mood and ready to face the day.

After lunch, the Occupational Therapist came by, and we went to the gym to work. She worked on his arm – both strengthening exercises, and stretching, and then the Physical Therapist took over and began working on the mat. His transfers from chair to bed to mat are much better, and I think that his strength is getting better all the time. During his PT, Lucy Kernen-Schloss came by and at the end of the session, we went to the garden, and had a nice conversation about Burke and her vacation in France over the summer. When we went back to the room, Sheila was there with a card and gift of the new Grandfathers! Thanks Sheila, and it is indeed, a wonderful world!

Soon after Sheila left, Andrew Brust stopped by with some wonderful dark chocolate, which David was saving for after dinner. Then, Peter and Mary came back and we had a nice, but short visit before David wanted to take a nap. I left with the Clutes, and we had a bite at Eataly, which was very nice – actually, I had a bite and some wine, Mary had some wine and Peter nibbled and then had some gelato on the way out. Such a fun place is Eataly – not quite as good as being in Rome, but nice, just the same!

So, at the end of the day, it looks like we have set a schedule for his therapies that looks something like this:

• Occupational Therapy from 9am to 10am
• Physical Therapy from 10am to 11am (working on walking)
• Physical Therapy from 1:30pm to 2:30pm (working on strengthening his legs)
• Speech Therapy from 2:30pm to 3:30pm (still to be confirmed – it may need to move to 11am to Noon)

We are grandparents!  A bit before 10am, I got a text from Alex that he and Claire were at the hospital, and at 3:26pm, I got another text that the baby had arrived and Mother, Baby and Dad were all doing well.  At 3:33pm, I got an email from Claire as well – now I hope you are relaxing!

Today was Davids first full day at the Jewish Home, and we saw the Physical and Occupational Therapists in the morning and then in the afternoon.  It was a day for assessments, so there wasn’t too much work, but he did some walking, sitting up, putting shoes on and off, and got his new wheelchair.  We also took a stroll to the garden out back, and sat for about half an hour.  It was great to get out in the fresh air.

In the afternoon we had a visit from Betsy Downes and her daughter, which was terrific and thanks for the gifts – the pastries were a nice finish to dinner tonight for David!  We were then joined by Peter and Mary Clute, and had a very nice visit with all.  Davids reputation for visitors has begun!  He was a little emotional today, and maybe it is a combination of the baby, new surroundings and new therapists, but I think he will be better tomorrow.

Now for some pictures of the happy family and Dad and Son.

Okay so now David is at the Jewish home resting comfortably and I just got back home and I think It’s going to be good. The nurses aide seems attentive, and he has a private room with a huge window overlooking 106th St (Duke Ellington Blvd).  The trip is a relatively short subway ride from home, and I will work over the next few days to find ways to include a walk into the trip, either by getting off the train before the 103rd Street stop, or some other creative way.

Tomorrow we will meet David’s new team of therapists.  We met the Doctor today, and one of the nurses, and his evening nurses aide.  Tomorrow I will get to work on making the room nicer to be in.  No visits today, and I hope that nobody went to HJD expecting to see David!

We got word that the move is happening today any minute now. We will be at the Jewish Home by this afternoon.
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I will write more tonight, but David had good Speech, Physical and Occupational Therapies, along with a parade of staff who are stopping by to say good-bye.

The picture to the left is David waiting for the Occupational Therapist this morning.  He is wearing the T-Shirt that Paula brought for him from Brazil.  Bridgette, I thought you might like to see the shirt from Sao Paulo!  David is staying one more night at HJD, but will probably be moving tomorrow. It will be very bittersweet, because he has become attached with the therapists particularly.  There is another video of him walking without the contraption, but using just the chair.  He is still getting lots of help from Steph and York, but it is a big step for him which is great.  He also was doing more exercises for his arm, and is getting a little more strength there as well.  He has begun saying words that he doesn’t mean to say.  Like “teacher” which he will say at the oddest times, when he means to say someone else.  At first I thought he was saying it for the therapists, but I think it is just a catch all for almost any person.  Liat says that is normal, and actually a good sign.  I’ll take that.

As I said, I am looking forward to his move because hopefully he will get a private room.  It was almost impossible for him to do Speech Therapy in the room because his roommate was making such a ruckus.  I mean, you can’t blame him, but it just seems wrong to subject other patients to that, and everyone is coming by and apologizing,  but that doesn’t help him sleep better at night or help him concentrate during Speech Therapy.

We had a visit from Randy Miller, Lynn’s son, which was very nice.  Lynn sent lovely flowers, which were beautiful, and matched Miss Piggy’s gown!  Other than Randy, and the therapists, it was a slow day, and I packed up a lot of stuff and brought it home so we won’t have so much to bring uptown tomorrow (if we actually go tomorrow!)  I am hopeful though.

May I be candid with you?

I feel that we have bonded.

I want to get drunk.

Fall down, obnoxious, one of those people you see in the streets on a Saturday evening near a college or university, drunk.

I won’t, but I want to.  I think just to lose control a little, for just a moment or an hour or the night!

I spent most of the day with David, and we had a nice FaceTime chat with Claire and Alex (still patiently waiting for our Grandchild to arrive) and soon after we were joined by Sheila and then Jackie stopped by.  She won’t tell you about it, but here is the link to her TED Talk.  Thanks for sharing and Peace be with you and you shouldn’t be modest.  And then Phyllis came by when dinner was being consumed – it amazes me that he has such an appetite.  I made a wonderful salad with the tomatoes that Jonathan and Sheryl brought yesterday.  One mistake though – I put it in the bag with the laundry that I did last night, and I’m just getting ready to fold the clothes that had to be re-laundered because the dressing leaked in the bag.  He enjoyed the salad though!

David is a little concerned about moving, and seemed shocked when I said that he could possibly be moving tomorrow.  Jackie reminded him that he had told her that he might be moving tomorrow, and he had to concede.  Also, after today, and his neighbor’s episodes caused by the laxative that his nurse gave him, I would think that he would be looking forward to getting out and being in a private room (fingers crossed!)  His neighbor yells a lot, but not nearly as loudly (or obnoxiously) as his wife.  I might add that she goes to the corner for a sandwich or two whenever there is an episode.  Was that mean?  Maybe I want to me drunk and mean!  Impossible!

The train back from DC was uneventful, and when I got to NY I spoke to Joy who spent the morning with David. He also had a visit from Liz and Electa. I got to the hospital at about 1 pm, and David’s new roommate is not what I would call quiet, so I think the move to the Jewish home, and hopefully a private room will make a difference. Of course, I have admit that when David’s parade of visitors started coming – Jonathan Deull and Sheryl Sturges, Maggie from UNIS, Becca and Greg, Ziad and Sandra, Maria and her husband (whose name, which was interesting and unusual escapes me at this moment, so Maria, send it to me), Brian from UNIS. it was quite a day, and thanks to the visitors who did a great job of arranging their times so we never had the room bursting at the seams!

After getting David ready for bed, I came home, and have relaxed for most of the evening. more tomorrow, and I will put information on the move as soon as I know.

Well, it is early, so the news on the Foreign Service is not good.  I didn’t make the grade.  You know they said “you should be very proud that you made it this far, blah, blah, blah” which is true, but doesn’t make you feel any better.  I did well, just didn’t make the cutoff.  I can always go back again next year!  There was one of the candidates who said a friend of hers took the oral assessment seven times before getting in.  I don’t think I could do seven times, but maybe one more stab at it.  I also felt like I was in very good company – two of the folks who didn’t make it either were lawyers and another had her Phd in Mandarin, so not to shabby company!  The strange thing was, I passed the part that I thought I didn’t do so well in, and didn’t in the other two parts that I thought I did well in.  Who knows!

I spoke to David (thanks Liz) and told him the whole story, and he actually sounds like he is speaking more.  Marjorie Ellenbogen also sent me an email saying that she thinks he is talking more too.  I can’t wait to get back tomorrow to check up on him!!

I spent the morning with David before heading home and then to Penn Station for my 3pm train to DC.  He did Physical Therapy with York and Occupational Therapy with Amanda.  He is getting stronger with his right leg, and they are working on getting him able to straighten the leg and lock his knee.  York said that later today he would walk again – practice, practice, practice.  Amanda retaped his shoulder to keep everything in place and and did some exercises to strengthen his right arm.  His right arm is still very weak, but seems to get a bit more each day.

I got a note from Gwen Lipsky who brought David dinner tonight, and they had a nice dinner and were joined by Hilary Ainger who brought chocolate, and they had a nice evening.

When I got to DC, I took a trial walk to the State Department building where the Oral Assessment is tomorrow at 7am.  I am not sure if I will write in the blog tomorrow – I won’t have much news of David, I don’t think.  He has some visitors lined up for tomorrow, and Liz (thanks Liz) will be checking in with him, and with him so I can call and say hello and let them know how it went. Then I head back on the train on Saturday morning at 9am.

This morning, two wonderful things happened – first, and this may seem like a small thing but it isn’t, David turned on on the electric razor.  Again, this may seem simple, but he wasn’t able to tell the difference between a push button and a slide switch, until this morning.  Second, we got notice from the insurance company that David is approved through Sunday.  This means that he will stay put for the weekend, and on Monday, they are going to push for three additional days, but if they don’t approve, we will make the move uptown on Monday or Tuesday.

Today was another big day of therapy with two hours of Physical, one and a half hours of Speech and an hour of Occupational.  Even though he had not slept well last night, he worked through and did everything that the therapists asked him to.
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We had visits from UNIS folks, and Liz stopped by, but we were at therapy and then Michelle stopped by.

Well, it was another day full of therapy.  Physical, followed by Occupational, followed by Speech, then lunch and a nap and another 1/2 hour of Speech and another hour of Physical Therapy.  By the end of the day, David was pretty exhausted.

During my lunch break and David’s nap, I got a call from the Social Worker who told me that David was declined at Village Care on Houston Street because they don’t have the facilities to support his needs.  After some questioning, it seems that because they are just a rehab facility, they don’t have the care that a stroke sufferer will need in the long term.  Amsterdam house declined for a totally technical reason – they are renegotiating their contract with Oxford and won’t take any Oxford patients until the contract is done.  So, David is accepted medically by both The Jewish Home on W 106th St (which I liked) and Park Terrace in Queens (which I also liked, but is too far for visitors).  After a few calls to the Social Worker and discussions with Doctors and Therapists, they are going to try to get David’s stay at HJD extended to early next week – Oxford wanted him transferred as soon as a bed was available which could have been today!!  YIKES!!  It is looking like they will be able to make a compelling argument that staying an additional 5 days in the acute rehab will be good for David.
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So, as if you aren’t already doing this, I ask that you light a candle, say a prayer, burn some incense or just hope that David will be at HJD over this weekend!  Many of you know this already, and David has been forcing me to tell everyone at the hospital, I am going to Washington, DC on Thursday and on Friday morning at 7am I will go to the State Department for the Oral Assessment which is the final step to becoming a potential Foreign Service Officer.  It is the final step that I have control over, and David made it pretty clear that it was not something that I could change or cancel.  Needless to say, it would be very difficult for me to get through Friday if he were to be in a strange new place with people that I didn’t know and trust.

Today was a Holiday, so there was very little going on at the hospital.  I was bringing the ukelele and wanted to pick up coffee, so I hailed a cab to the Starbucks on First Ave and 17th.  When I got out of the cab, I scraped my knee on an exposed bolt on the back of the seat, and was bleeding profusely.  I tried to stop the bleeding at Starbucks, but I am afraid it continued all the way to HJD.  After I cleaned up my wound a little we started getting visitors.  Jane Lang came by and read another poem she wrote for David.  He always gets a little emotional with the poems.  Then we were joined by Roy and Valerie, who are on their way back to London as I type this.

During a break from visits, we did some leg exercises and then some speech work.  His physical progress is good, but I can’t really tell with the speech.  Sometimes it seems like the words come, and other times, it is just too difficult for him to get the words out.  Then we had a great visit with Gene, Liz, Electa and Quinn.  There was a lot of lively conversation that David enjoyed listening to.  He lovers to hear about what folks are doing.  Soon after, we had lunch and then they wanted him to get out of bed and sit up for two hours.  David said fine, but almost as soon as he was up, he asked when he could go back to bed. He didn’t seem to remember, or didn’t want to remember that he said he would sit up for two hours.  We turned on tennis, and I headed out to the Container Store to pick up some things for the room and I needed a garment bag for my trip at the end of the week.  It took longer than I had anticipated because of all the back to school shoppers – what a line there was!  I was still back in about an hour, and the Occupational Therapist came to work with David.  At that moment Judith Honor and her husband came by and had an abbreviated visit.  I cleaned up a little and rearranged  to make the room less cluttered.

Then, when we were alone, I played the ukelele and we sang “Tiny Bubbles” and “Has Anybody Seen My Gal?”, both went well, but we ended with “Edelweiss”, which I sang mostly, David doesn’t know the words as well, but I figured, since I could play it, why not.  Then it was time for dinner, and after dinner and getting settled for the night, I said goodnight, and made the journey home – carefully avoiding hazardous taxis.

Today was a very quiet day.  We had Physical Therapy with Michelle, and David has more strength in his right leg, which I discovered this evening when we did some more exercises on our own.  He starts off slowly, but once he gets the hang of the rep, he gets more strength.  I think that this comes from the apraxia which makes it difficult for him to know what his body is supposed to do.  It often takes a few demonstrations from the PT for David to get what it is they are asking him to do.  He works very hard though, once he understands and gets the feel for what to do.  We also did some work on speech in the afternoon on our own.  He wasn’t as vocal today as he has been.

We had visits from PD and Michael from Washington, which was fun.  They told us that “One Man, Two Guvnors” was about the funniest thing they have ever seen.  Too bad it is closing today.  Then we had folks from Fieldston stop by – first the Schein’s followed by the Coogan’s.  Both with delicious goodies.  Also, from UNIS, we had visits from Sheila and Jackie, which was very nice.

Tomorrow, because of the holiday, there are no therapies at all, so I will do some work on his right leg and do the arm stretches that Amanda showed me as well as continue with the Speech Therapy exercises on the iPad.

What are the simple joys?  Well, this is one of them.  David at his Physical Therapy session.  Not his usual therapists, but they were playing with him, and I am amazed at the advance he has made with keeping his balance, and you will notice the fun that he is having.  Not to mention the therapists are having fun with David.  They can’t take that away!

We started out the day with a nice visit from Jane Lang, who brought another poem that she wrote inspired by David’s walking.  It is always great to see folks who haven’t seen him in over a week, because the change is so marked.  He is talking a little more every day and moving more and his spirits are still very good.  While I do find being a cheerleader very exhausting, I just imagine what it would be like to be trying to motivate someone who was not as eager and spirited as David.  After Jane, Joy stopped by (sorry about the parking ticket, Joy!) and we went to the gym for the PT where this video was taken.  It was a day of games, because later in the day, Deborah – the recreational therapist – stopped by and we played a game to improve Davids calculating skills (adding, subtracting, division and multiplication) and he did really well.

When I came back from lunch, Roy and Valerie had stopped by, and I just missed them, but Chrissie and her daughter, Caroline were still there, and we looked at the book that Chrissie had created about the yellow hat at the wedding.  Here is one sample of the pictures of the yellow hat from the wedding.

Well, I knew it would happen sooner or later, but last night, I came home after a lovely dinner with Gene, Liz and Chrissie, did laundry, and went to sleep.  No blog entry!  YIKES!  Sorry.

Yesterday was another good day.  He was speaking a little more, getting some more movement and strength in his right leg and is moving the right arm a tiny bit.  The two highlights are that after a lovely lunch of sushi, he has been approved to eat anything and during his OT he practiced getting from the wheelchair into a bathtub.

Some great visits today as well – Roy and Valerie came by and told us all about their day of sightseeing, and then Jackie stopped by, and both Roy and Valerie were amazed to watch the two of them communicate about UNIS stuff.  It is terrific to see that he is as engaged and interested as possible in all the goings on at UNIS, and is giving advise to anyone who can interpret!  After Jackie, Liz and Chrissie McHenry stopped by, and we all had a nice visit.  Soon, David let us know that he was tired, and after a few minutes of getting him arranged for the evening, I left for home.