Saturday, August 18

Last night I found this article in the New York Times in my searching the internet on information. I think that we will continue to try to get David to sing.  I am also beginning to see if we need to supplement his speech therapy when he gets transferred.  One of the questions was how many days of speech therapy he will get once he goes to a subacute care facility, and I am looking to weigh the difference between the location of the facility and if they will allow, and how much it would cost to get a private speech therapist in.  If anyone reading this has any contacts or leads that I could talk to, that would be terrific!

Today David had a combination of Physical and Occupational Therapy, which was great.  One of the exercises that he was doing was reaching and throwing small bean bag frogs, which had special meaning, as many of you are aware.  He did very well, and was up for a while and earned an early afternoon nap.  I also did some spelling/reading exercises on the iPad, and he seems to be able to find the answers better with spoken words more than with visual cues, and is getting better at saying the words that he sees written.

He has many hills to climb and bridges to cross, but with help and the will, I am confident that he will be able to make it.  Also, last night, like St George, I killed my own private dragon, and I feel very relieved.  David let me know he knew what I had done, and he gave me the thumbs up with vigor, which made me feel even better.  Sometimes I have to use my energy to take care of myself.  Cryptic, I know, but lets just say there were victories all around!

One thought on “Saturday, August 18

  1. Great article, Scott. Oliver Sacks new book, Musicophilia, also recounts many cases where music therapy changed everything. I know that insurance can stop certain therapies after 100 days, which is kind of ridiculous as all those therapies are what it takes to recover from a stroke. I don’t know any speech therapists to recommend, but I think it is a great idea to keep that going no matter what. And congratulations on overcoming your dragon today, too. I guess we all have them, don’t we?

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