Last night David didn’t sleep well because he is experiencing pain on his right side, particularly his arm.  When I arrived he was just finishing up Physical Therapy, but York said that he didn’t do much because of the extreme pain he was experiencing.  Later in the morning, the pain specialist came by to talk to David, and he believes that his brain is sending pain signals to the right side, and makes his skin very sensitive to any touch.  He is prescribing Lyrica, and he had his first dose at 1pm.  He was able to have his Speech Therapy followed by Occupational Therapy, where Amanda worked to get his arm desensitized to the pain.  She put a sleeve on him, and it seemed to make a difference.  At least the frequency of pain seemed to be diminished.

We had visits from Jackie and Susan from UNIS and Geralyn and Hannah Lobel from Burke.  Great to see everyone.  I have to say, he gets lots of encouragement and energy from his visitors.

David also said the first full sentence, which would be a great thing, except for what he said.  When we got back to the room and he was in bed after PT in the morning, he was trying to tell me about someone who had stopped by to see him, and I was not being very successful in figuring out who he was talking about, after many attempts, he looked very angry, and paused and said, “I will remember this.”  My response was appropriate, I think.  I said “Don’t worry, I am not afraid of your remembering.”

After dinner with David, we got a surprise visit from Liz McHenry.  It was great to see her for a short visit, and hear a bit about their summer.  More visits to come and more stories.  We walked out together, and I met Roy and Valerie Zeff, our friends who are visiting from London, and we went out for a lovely dinner.  Tomorrow, I am heading to Queens to look at Park Terrace.